Balance Awareness Week: Vertigo SUCKS

Vertigo SUCKS!

Living this nightmare for the last nine years has changed me. EVERY aspect of my life has been altered by disruptive daily symptoms.

A vestibular disorder (includes the parts of the inner ear and brain that help control balance and eye movements) is the term that encompasses the following horrific symptoms.

Here are just a few…

  • Visual-spatial problems
  • Excessive clumsiness
  • Poor hand-eye and eye-foot coordination
  • Trouble moving in the dark
  • Difficulty reading or concentrating
  • Fatigue
  • Vertigo
  • Dizziness
  • Head may be held in a titled position
  • Tendency to touch or hold onto something when standing, or to touch or hold the head while seated

The first few years

The first few years of silently battling these symptoms left me feeling depressed and isolated.

The symptoms are often subjective, and medical practitioners have a difficult time believing in symptoms that can’t be tracked with lab tests or imaging. I thought I was going crazy!

VEDA to the rescue:

VEDA (Vestibular Disorders Association) entered my life at a low point. It provided me with information that enabled me to rebuild a solid informational foundation. I felt more confident communicating with doctors and specialists. This newfound confidence allowed me to determine which medical professionals were qualified to look after my well being and would help elevate my quality of life.

I’m forever grateful to VEDA for catching my back, and I want to make sure they’re around to support the next sufferer.

What can you do?

  1. Acknowledgment: I can’t tell you how many people I’ve encountered that have dismissed my symptoms because I “don’t look sick”! It’s disheartening and disrespectful.
  2. Spread awareness. They say awareness is the catalyst for change, and I’m hoping you’re willing to be a change agent! Balance Awareness Week is Sept 15 – 21, 2014.

I would appreciate you spreading this “Feeling Dizzy” Info-graphic (PDF) (JPG)

Feeling dizzy? You may have a vestibular disorder!

Infographic by: VEDA @ vestibular.org

Also, if you have the financial means to do so, I would appreciate your donation. Your funds will be going to help VEDA!

Balance disorders MUST BE eradicated, and it’s starts with awareness.

Much love,
Marissa

Traveling to Washington, D.C. Post Vestibular Dysfunction

What an experience! I was lucky enough to have VEDA (Vestibular Disorders Association) nominate me to represent the vestibular community at the NORD (National Organization of Rare Disorders) gala in Washington, D.C. It’s been a little over a month since my return from DC.

US Capital

View of the US Capital from the US Botanic Gardens.

Here’s a few highlights:

  1. Stumbled upon two women living with vestibular dysfunctions. One gal has battled motion sickness since childhood, and the other suffers from Meniere’s disease. Both gals work for the airline I was traveling with. Small world!
  2. I met Tom, a fellow dizzy friend I connected with via the blog! He took a train bus from Ohio to DC just so we could hang out. It was comforting to spend time with someone that “gets it”!
  3. I survived a 5 hour flight… both ways!
  4. I attended my first gala, where 250+ supporters of the rare disease community heard the word “vestibular” for the first time!
  5. My husband and I were invited by a member of Congressman Fred Uptons staff to have a private tour of The Capital.
  6. I dined at more than one busy restaurant in a single week…and survived.
  7. I made it up the Lincoln memorial steps! (Tip: Use the side rails and your walking stick.)
  8. I walked a mile, to and from the local grocery store, on congested streets by myself!

 

Two Dizzy Pals

Two dizzy pals meet: Tom & Marissa swapping dizzy stories over lunch!

Exciting experiences still possible

I NEVER imagined experiencing any of the aforementioned highlights post vestibular dysfunction.

Traveling to Washington DC was my first major trip away from home since that initial life robbing vertigo symptom presented itself.

It’s been a harsh 9 years living with a vestibular dysfunction. Majority of my time has been spent behind the four walls of my room. I’ve dreamed of once again having life altering experiences, but assumed exciting travel was no longer part of my story.

I now believe in possibility. Courage now has tangible meaning. I can say with confidence that life can still paint meaningful highlights, in spite of chronic illness.

 

Lincoln Selfie

Had to get in a Lincoln selfie!

Always prepare for a little gloom

I have to acknowledge there was gloomy side to this trip. I quickly realized how isolated the vestibular community is from the remainder of the chronic illness population. We technically don’t qualify as a rare disorder. According to the NORD website “In the U.S., a disease is considered rare if it is believed to affect fewer than 200,000 Americans.” I’ve read estimates as high as 69 million people in the US have experienced a vestibular dysfunction. Also, majority of the rare disorders acknowledged at the NORD gala were traced back to a genetic abnormality. Once a genetic abnormality is identified, a drug protocol treatment plan becomes a possibility. Vestibular dysfunction, on the other hand, covers an array of disorders. Folks are left with disabling symptoms that may or may not stem from a genetic abnormality. We’re often living with subjective symptoms that don’t have an identified source. Hence, this may be a reason why updated testing and treatment options are minimal.

I can’t thank NORD enough for taking us in and welcoming vestibular disorders to the table!

This trip made it clear that WE MUST support VEDA. Effective treatment options will present once we have access to updated diagnostic testing. We will have access to technologies when awareness becomes so overwhelming we can’t be ignored.

Portraits of courage posters at gala

At the gala, posters were displayed highlighting stories of patients and families living with rare diseases.

Never ease up on your grip of hope

I left DC in hopeful spirits. I believe technology and time will collide producing effective treatment options and cures for folks battling chronic dizziness and vertigo.

I leave you with this. Don’t lose hope. Year one I was so disoriented I could hardly circle my neighborhood block! Yes, technically I’m now back behind the four walls of my room, but at least I can hold onto the hope that future positive life experiences are possible. I can’t say it gets better, but I can say you will learn to adapt and survive.

Much love,
Marissa

PS: Thanks to NORD and VEDA for this life changing experience!

Vestibular Community Members Facing Homelessness?

Nobody likes moving back home with their folks. At least, not this gal. I NEVER thought I would be in my 30’s living with my in-laws (I’m blessed I have awesome in-laws). I’m learning my situation is not uncommon for a person living with chronic illness.

adult gal living back at home with mom

Photo credit: Northern Star

Homelessness is essentially caused by the inability of households to pay for housing.

The average monthly disability SSDI benefit in 2013 was $1,146.  That leaves a gross annual income of $13,752. It’s suggested that 30%* of your income goes toward housing and utilities, which allots $343.00 a month toward housing. I’m concerned many members of the vestibular community are being forced to live with family, friends, or may even become homeless! As I continue digging through rental housing data, my worst fears are being realized.

Fair market rental averages throughout US counties:

Oregon- Salem
Studio- $547
1 Bedroom- $578

Washington- Seattle-Bellevue
Studio- $771
1 Bedroom- $913

California- Los Angeles
Studio- $896
1 Bedroom- $1,083

Chicago-Joliet-Naperville
Studio – $727
1 Bedroom- $826

New York, NY
Studio- $1,163
1 Bedroom- $1,215

Affordable housing for members of our community should be a top priority.

The Center for Housing Policy and Enterprise Community Partners compiled a list of the positive impacts of affordable housing on health. Here are the top three I think are critical:

  1.  Homeownership may contribute to health improvements by fostering greater self-esteem, increased residential stability and an increased sense of security and control over one’s physical environment.
  2. Affordable housing may improve health outcomes by freeing up family resources for nutritious food and health care expenditures.
  3.  Stable, affordable housing may improve health outcomes for individuals with chronic illness and disabilities and seniors by providing a stable and efficient platform for the ongoing delivery of health care and other necessary services.

 

Is affordable housing even accessible? 

I currently live in Los Angeles County. The wait list for Section 8 housing has been closed since 2004 ( I could not confirm nor deny this. I was unable to reach anyone from the housing authority)! I was able to confirm that the city of Norwalk’s (suburban city in Los Angles County) Section 8 wait list has been closed since 2007.  If Norwalk Section 8 wait list miraculously opened up, and the average SSDI disability benefit recipient was granted a housing voucher, they still wouldn’t be able to afford a studio or 1 bedroom apartment! Proof of search results from LACounty website:

Your Search Found 0 Properties: (In Norwalk, Rent range $0 to $343 a month, Accepting Section 8 Vouchers)We’re sorry. No housing was found that matched your request. You may want to try a search with a different price range or a different locality.

SO…is affordable housing affordable? Obviously not. The next few months I will be exploring alternative ways to provide realistic affordable housing to vestibular members within our community. It’s my belief that living in a safe environment and having access to nutritious foods are the building blocks to developing a better quality of life.

Has chronic illness forced you into an uncertain housing situation? Share in the comments below.

Much love,
Marissa

“*Typically, not more than 30% of your gross income should be spent on rent including utilities [electric, gas, etc.]. This is the high-end of what you may be able to spend per month. Your personal financial status will determine the actual amount you may want to spend per month on rent. “

Sources:
http://www.huduser.org/
http://housing.lacounty.gov/index.html
http://www.ssa.gov/pressoffice/basicfact.htm
http://www.endhomelessness.org/library/entry/the-state-of-homelessness-2013
http://chispahousing.org/docs/The%20Positive%20Impacts%20of%20Affordable%20Housing%20on%20Health.pdf

Relax, Doctors Are Human. Kinda.

I can’t speak for you, but doctors stress me out!

I prepare for medical appointments the same way I prepare for final exams.

I spend weeks researching terms and piecing together what I believe is relevant data.

Carrie and Saul standing in front of Carries color coded wall.

Photo: Kent Smith/SHOWTIME- Homeland

I print out pages of medical journals pouring over complex medical terminology I’m not qualified to comprehend. That doesn’t stop me from trying.

Armed with groundbreaking information…recent symptom checklist…list of questions… I’m prepared for battle.

It NEVER seems to go as well as planned out in my head!

Doc: ” Hello. I’m Dr. SharpAsATack. What brings you here today?

Me: “Well, this is happening. Ok, let me tell you. Did you read the latest breakthrough? Is this 5th symptom on my checklist normal? The last doctor I saw said I have Xyz. Do you believe me? ”

Total spew!

You know what I’m talking about?

It’s kinda sad. Fighting to get your life back, while given 15 minutes to plead your case in front of Dr. SharpAsATack, and the opportunity gets away because of intimidation. Craziness.

Scrubs and a lab coat get me every time.

I’ve been unable to view Dr. SharpAsATack as human, which rocks my confidence, hence spew.

There has to be a better way. Let’s get some things straight.

#1. Doctors are human!

Kinda. They are “special” humans that have a fascinating ability to understand complex data. Don’t allow that specialized knowledge to intimidate you.

#2. Less is more.

What expletive runs through my doctors mind when he/she glances at my manila folder filled with papers! Lol. I’m guessing… $HIT!

There’s nothing wrong keeping up on the latest medical findings, but be mindful not to inundate your doctor on the initial visit. Allow the relationship to cultivate. After a relationship is established, don’t be afraid to suggest an article you two can review.

Tip: While at initial visit, stay focused on presenting your medical history. If you suffer from dizziness, check out VEDAs suggested worksheets.

#3. Trust yourself.

I start to get a hot flash the second after the nurse says…” The doctor will be right with you.”

After nine years of living with these wretched symptoms, one might assume I would be confident rattling off my symptoms. That’s the problem with hidden disabilities. You learn to become a defense attorney that represents your symptoms from the first offense. Folks poke holes at your defense and you start questioning yourself! You live in your body and you know when something is off! Trust that.

I’m hoping these few simple points will help us both stay focused and remove some stress when tackling the next medical appointment.

Hugs and know that someone has your back.

Much love,
Marissa

Life Lessons From The Cemetery

Hanging out in the cemetery does something to you. More specifically, it does something to your inner-spirit.

The cemetery is walking distance from where I’m staying. It’s a place I frequent often, and it’s become part of my walking ritual.

I could take a different route, but I choose to walk through the cemetery as often as possible. Something draws me there.

At first, I thought it was the beautiful landscape. I became convinced it was the solitude I craved. Now, I realize I’m drawn to the cemetery for a different reason.

Today, I found myself being pulled toward a particular tree on the cemetery grounds.

I sat down and was surrounded by hundreds of burial plots. It wasn’t eerie. It was comforting.

Have you been to a cemetery lately?

You’d be amazed how beautiful a cemetery looks during the holiday season.

The living have decorated with Poinsettias, Christmas trees, and an array of festive holiday decorations. It’s breathtaking.

As I sat there, I found myself fixating on one particular burial plot. It was amazing. Christmas tree, ornaments, lights and festive trinkets. It was a Christmas celebration.

Then it hit me, only the living can experience the holiday festivities with their family and friends!

Would this individual trade places with me knowing that I’m living with a chronic illness?

I’m certain he would!

I’m certain he would take on my current health burdens in exchange for being in the presence of the awesome people who honor him in such a publically visual way.

I’ll leave you with this.

On the Christmas tree was a large sign decoration with the word “Hope”.

beautiful visual display of love

I’m convinced the decoration is a positive reminder for all those that stumble upon this post.

Hope:
Hope you find a cure.
Hope you find peace.
Hope you find love.
Hope you find acceptance.
Hope you find…..(whatever makes you appreciate that your still among the living.)

Much love,
Marissa

PS: Walking through this cemetery has changed me. It’s going to be a constant reminder of how blessed I am to be among the living despite chronic illness!

The Spin Sisters Podcast: Episode #2- Chronic Illness and the Holidays

Play

( *To download episode to desktop: Right click  “Download”>Save as or Save link as.)

Santa feeling stressed

December 18, 2013

Ready or not, the holidays are upon us!
Are you getting buried in tinsel?
We completely get it!
Also, we talk how to tackle New Year’s resolutions.
Let’s confront these holdiays together…

Show notes:

Living with chronic illness during the holidays
10 tips to beat the holiday blues 
New Year’s resolutions and chronic illness 

Gift ideas for the holidays:
63 gifts under $10.00
White chocolate holiday bark

Connect with us! We would love to hear from you over on our Facebook page…. The Spin Sisters Podcast

With Love,
Marissa & Jane

PS: Happy Holidays to you and yours!

*Image: stockimages

 

How Many Years Can Chronic Illness Keep You From Marriage?

Engagement- hands behind back holding ring box

Image by: scottchan

I need you to listen up now! I don’t want you to make the same mistake I did… SO PLEASE… pay attention.

Maybe you’ve come across the discouraging stat: 75% of marriages end in divorce when a spouse is stricken with chronic illness.

This distressing statistic didn’t even phase me. Getting through a wedding day terrified me!

I’d been engaged for years before I even considered getting married. (Didn’t Babe know about the stat?)

When Babe proposed I didn’t hear “Will you marry me?” I heard… ” I ACCEPT YOU”!

Chronic illness really messes with your head! A specific piece of information comes into the brain for processing, but your so battered from feeling like s@%t you don’t properly process the intended message.

See, the acceptance message I pulled from Babe’s proposal was all I needed. I wanted to stay exactly in that moment. Acceptance was my happily ever after!

After the unforeseen engagement, I didn’t run out and purchase bridal magazines, start a “wedding of my dreams” Pinterest board, and I sure wasn’t in the headspace to set a date.

Don’t get me wrong. I was on cloud nine knowing I would be spending the rest of my life with an AWESOME man that made my heart flutter!

So, what was the problem? I was uncertain.

Questions started to collect:

Can I make it through my wedding day? How long can I stand still during the ceremony? Should I hire a DJ even if I can’t dance at my own wedding?

The questions kept coming!

The burden of questions became paralyzing. I didn’t have the “right” answers. I didn’t know who to turn to for support. When I did attempt to express my feelings, to a select few, I didn’t want to accept their solutions.

Weddings are supposed to generate one of the happiest days of your life, however, questions piled up so high I couldn’t see how I was going to experience a joyful day.

So, I did what most people do when their facing an uncomfortable situation, I avoided it. I steered clear of the idea of marriage. I was content with being engaged.

Funny thing happens when you attempt to avoid something specific, it ALWAYS seems to show up!

I couldn’t attend a major family function without someone hinting about wedding dates and plans.

Didn’t they get it?

You see, marriage was only possible after “the miracle”. I was waiting on a cure!

It’s evident that my hesitation to get married was kept alive by a belief that I was going to be miraculously cured.

Subconsciously, I REFUSED to entertain the idea of getting married. ONE DAY I was going to have a joyous wedding day, which was not possible if I remained chronically ill! ( What a horrible message to have continuously playing in the background!)

Listen up: DON’T make this mistake. Don’t distance yourself from experiencing joy because your waiting on a cure. Don’t bombard yourself with burdens that will bury you. Surround yourself with practical solutions that lead to positive outcomes.

If you find yourself asking questions that don’t have meaningful and productive answers… consider rephrasing your questions!

I’ll leave you with this.

Last month I got married. WHOOP…WHOOP… We ELOPED!

I couldn’t have been more proud of us as a couple. It wasn’t about dancing, being walked down the aisle, or making it through the day.

It was about our commitment to one another. It was about creating an environment that allowed us to celebrate one another. It was about putting ourselves in a situation where we had the opportunity to process and experience the beautiful union known as marriage.

I LOVE being married. I LOVE being a wife. I LOVE that I get to be happy despite chronic illness.

In sickness and in health!

Much love,
Marissa

PS: Babe and I were engaged for 7 years before we got married!

PPS: Crazy thing…in my mind we’d only been engaged for 3! Allow me to repeat: Don’t keep yourself from experiencing joy because your waiting for _________(insert whatever excuse you’re currently harboring.)

Start Writing Your Own Prescriptions (RX)

Daily RX pad

Photo by: voraorn

Just admit it…

Your sick and tired of feeling “sick and tired”.

One cry away from being “all cried out”.

Taking pills for “this” or “that”…Distressed by the number of pills you’re forced to take, or resentful because there’s not a pill to treat your condition.

What if you possessed control over the prescriptions you’re being administered?

I get it… the physicians in control… in possession of a magical prescription (RX) notepad that grants access to a rainbow of drugs that can treat MANY symptoms you’re battling.

While this is true… maybe it’s best we’re not granted full access to this magical prescription pad. We might soon find ourselves with another problem – ADDICTION!

Alright, let’s agree to leave legal-drug-pushing to the professionals, but…

Have you considered writing out your own “Daily RX”?

Call me crazy, but I’m going to bet on someone… YOU!

I’m going to bet that YOU can safely write yourself out a daily RX that strengthens your inner-spirit.

Inner-spirit?

I’m not going to get woo-woo or preachy on you, however, I’m going to challenge you to develop a plan to combat the dark emotions that accompany chronic illness…

A plan that helps you withstand: Anger… fear… stress… worry…

A daily RX, you prescribe, focused on enhancing your quality of life.

Unless your physician is Patch Adams, you won’t be prescribed the following RX list:

  •  Watch a funny YouTube clip.
  • Make your bed.
  • Take a shower and brush your teeth .
  • Open your windows to let in some fresh air
  • Pray
  • Meditate
  • Write for 15 minutes on any topic of your choosing
  • Send an email off to someone you admire
  • Read something uplifting for 15 minutes

 

Seems silly, right?

Who’s sillier?:

Person A: Chooses not to wear a life jacket while kayaking.

Person B: Chooses to be properly fitted for a life jacket that may save his/her life in case the kayak capsizes.

Uplifting, daily RX lists, are your properly fitted life jacket! An important part of your safety equipment that keeps you from drowning into the emotional, dark, murky waters of chronic illness.

I’m hopeful with regular use, you may start to see the positive side effects!

Dont sabotage, just start!

My list often contains 3-4 daily prescriptions. (If you’re hesitant, start experimenting with just one daily RX!) There’s no “right” or “wrong” way to do this.

Daily RX list written of whiteboard

I use a whiteboard, but i’m considering purchasing my own RX pad!

Are you open to sharing what you’ll consider adding to your daily RX? If so, comment below.

Much love,
Marissa

PS: If you suffer from anger… fear… stress… worry… etc. on a daily basis, please consult with your physician! Hugs, and know your’re not alone! There’s help out there.

 

iOS 7 Debacle Regarding Vestibular Disorders

iOS7- iPhone hero shot by Apple

September 18, Apple released iOS 7. Adoption rates were being touted as high as 35% on day one.

I admit, I was salivating over the new iOS, overly eager to pounce on the anticipated update.

UNTIL… I got the text message alert from my fiancé!

“Bug, not sure if you have updated your phone, but don’t do it just yet… I had to update mine and the movement might bother you…”

Movement?

I said to myself…”What the heck is this guy talking about?”

Then it hit me! I found myself transported back to the iOS 7 Apple 2013 Keynote.

Craig Federighi, with his lovely locks of hair, passionately announced…

“As you move the device in your hand, it actually tracks your motion. It has Parallax, you can see behind the icons. It’s really incredible, and it carries across the system, this liveliness…”

I recall sitting through that streaming keynote thinking… “Oh S**T … ParaWHO?”

Like an awful blind date, I guess I blocked it out… DENIAL.

What the heck is a Vestibular Disorder?

You see, I have a Vestibular (balance) disorder.

A catastrophic disconnect between the vestibular system (includes the inner ear balance organs) and the parts of my brain that coordinate and process balance information.

Your brain is miraculous and often has the ability to compensate for damage, but I happen to be one of the unlucky ones that failed to compensate.

It appears, the balance areas of my brain are incapable of change.

My most unsettling symptoms are:  Chronic disequilibrium, bouts of vertigo, nausea, fatigue, vision sensitivity, anxiety, insomnia, and cognitive disturbances – I’ll let you visualize how these nasty symptoms interfere with a “normal” life workflow.

Folks living with vestibular disorders suffer a battery of debilitating symptoms from vertigo and dizziness to hearing changes. You can find a full list of symptoms here.

Can I catch a Vestibular Disorder?

Fair question!

“The vestibular system can be compromised in many ways. Viral infections (labrynthitis and vestibular neuritis), disorders that affect the inner ear fluid levels (Ménière’s disease and secondary endolymphatic hydrops), trauma from head injury, benign tumors (acoustic neuromas), and age related degeneration can all cause permanent damage to it. “

I don’t want to leave out my dear friends that suffer from debilitating symptoms like vertigo, nausea, and dizziness stemming from neurological conditions like…MS and long-standing brain stem lesion.

What’s the big deal, can’t you just get a Droid?

Let me stop you right there!

This isn’t about affordability of phones…. simply not updating your phone… or switching cell phone devices!

This is an issue of access.

If a group of individuals are vocalizing that a feature of technology is making them physically sick or exacerbating symptoms, and they can’t access technology, this should be taken seriously.

The future of the web and technologies that access the web are rapidly changing,  but access by EVERYONE regardless of disability is a founding principle.

The power of the Web is in its universality. Access by everyone regardless of disability is an essential aspect. — Tim Berners-Lee, W3C Director and inventor of the World Wide Web

I’m afraid to update my phone, because what if I get sick?

Not every person living with a vestibular disorder will be affected. It’s been noted, various folks living with a variety of vestibular disorders HAVE NOT been afflicted.

Don’t be afraid!

Someone within your 15 mile radius has an iPhone, ask to use it!  To be on the safe side, head to the Apple store (It’s been suggested to get there early AM…You know how we are in crowded malls!).

Have one of the Apple associates disable Parallax, and if the aggressive zooming in-and-out of icons and folders don’t appear to bother you… BAM… your one of the lucky ones. Update that baby!

Where can I learn more about iOS 7 and how it’s affecting people?

Here are a few fantastic articles that have surfaced:

 iOS 7 Animations Cause Nausea for Some.

Why iOS 7 is making some users sick

iOS 7 and motion sickness: What you can do, and where you can learn more

The rise of digital motion sickness: Video games, 3D films and iOS7 set to make condition the 21st century’s biggest occupational disease 

Where can I voice my opinion and concern:

I like your awareness spirit!

1.) Join the active discussion on the Apple support forum:

Any way to turn off iOS 7 navigation animations 

2.) Email Apple’s accessibility team, and express your concerns:

Apple’s an awesome company that’s shown a willingness to address accessibility issues. Their accessibility email address… accessibility@apple.com

 3.) File a report with Apple:

Jenni Leder, mobile app developer,  is suggesting… “file a report here: bugreport.apple.com and use this number so it duplicated: 15074144″

If you’ve never filed a bug report, see what Jenni’s bug report looks like.

4.) Join in solidarity:

*Head over to imore’s blog and complete the iOS 7 motion sickness poll.

Final Thoughts:

I’ve said enough!  Let the words of independent iOS developer, Matt Gemmell,  reverberate throughout your body…

“Accessibility affects everyone, and devices should be usable in all situations, by as many people as possible. Designing for accessibility levels the playing field, and increases the utility of devices for everybody.”

References:

Vestibular Disorders Association.” Home. Web. 29 Sept. 2013.
“Designing for Inclusion.” Designing for Inclusion. Web. 28 Sept. 2013
Boismier, Thomas E. “Vestibular Injury.” Compensation, De-compensation, and Failure to Compensate (n.d.): n. pag.Http://vestibular.org/sites/default/files/page_files/Vestibular%20Injury.pdf. VEDA. Web. vestibular.org.

Much love,
Marissa

PS: Change is slow, but possible!

PPS: To those that have found themselves subjected to hundreds of demoralizing, hateful, insensitive comments on various blogs… HUGS. You have a community that supports you and understands you. My girl Jane and I got your back! Connect with us over on Facebook via The Spin Sisters Podcast!

*Motion sickness appears to be the umbrella term used, but for those of us experiencing heightened vestibular symptoms triggered by the device, I believe we qualify to fill out the poll.

** Shout- out to Craig Grannell for taking on this issue and being one of the first to report it!

iOS7 Update Setting off Vertigo, Dizziness, Nausea and more

We’re all for advancement, but this is getting personal. Who wants to use a mobile device that triggers vertigo, dizziness, nausea…

 

Much love,
Marissa

PS: PLEASE SHARE and help us bring this important matter to Apples attention.