I came across this video on YouTube and it struck a cord. This gal, Lynn, is SO BRAVE for sharing her Dystonia experience. I appreciate her giving us visual insight into her experience living with Dystonia.
HEADS UP Vestibular folks: There is a ton of visual movement from the camera and from watching her movement.
Much love,
Marissa
P.S. Looking forward to interviewing Pam from Dystoniamuse.com this weekend!
Marissa,
How helpful to show dystonia with a video, certainly worth ten thousand words! This is one complicated condition for explanation and you’ve handled a difficult subject with grace and aplomb! I’m so grateful for your friendship, compassion and activism. Abledis is a blessing for so many people. Looking forward to sharing more about Dystonia with you in our interview this weekend.
-Pamela-
“How helpful to show dystonia with a video, certainly worth ten thousand words”
Exactly what I was thinking! It is complicated, but I am blessed you helped me navigate this journey. Could NOT HAVE done it without you.
The podcast rocked and I can’t wait to put it up.
Much love,
Marissa