Trying To Understand Dystonia- Whiteboard Edition Plus Video

Marissa spending time on her whiteboard trying to understand Dystonia

I came across this video on YouTube and it struck a cord. This gal, Lynn,  is SO BRAVE for sharing her Dystonia experience. I appreciate her giving us visual insight into her experience living with Dystonia.

HEADS UP Vestibular folks: There is a ton of visual movement from the camera and from watching her movement.

Much love,
Marissa

P.S. Looking forward to interviewing Pam from Dystoniamuse.com this weekend!

 

2 comments

  1. Marissa,
    How helpful to show dystonia with a video, certainly worth ten thousand words! This is one complicated condition for explanation and you’ve handled a difficult subject with grace and aplomb! I’m so grateful for your friendship, compassion and activism. Abledis is a blessing for so many people. Looking forward to sharing more about Dystonia with you in our interview this weekend.
    -Pamela-

  2. “How helpful to show dystonia with a video, certainly worth ten thousand words”

    Exactly what I was thinking! It is complicated, but I am blessed you helped me navigate this journey. Could NOT HAVE done it without you.
    The podcast rocked and I can’t wait to put it up.

    Much love,
    Marissa

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