Trying To Understand Dystonia- Whiteboard Edition Plus Video

Marissa spending time on her whiteboard trying to understand Dystonia

I came across this video on YouTube and it struck a cord. This gal, Lynn,  is SO BRAVE for sharing her Dystonia experience. I appreciate her giving us visual insight into her experience living with Dystonia.

HEADS UP Vestibular folks: There is a ton of visual movement from the camera and from watching her movement.

Much love,
Marissa

P.S. Looking forward to interviewing Pam from Dystoniamuse.com this weekend!

 

Marissa Trying To Understand Brain Arteriovenous Malformation (AVM)

Bare with me as I try to understand the complexities of brain arteriovenous malformation! I have been struggling connecting TWO medical terms lately.

Brain AVM thoughts on whiteboard

1. Hemorrhage: “an escape of blood from ruptured blood vessels.”

2. Stroke: ” A stroke is the sudden death of brain cells in a localized area due to inadequate blood flow.”

I COULD NOT MAKE THE CONNECTION between inadequate blood flow (stroke) with the escape of blood from ruptured blood vessels (hemorrhage).

I assumed that you could ONLY develop a stroke from a blood clot in the brain. I didn’t realize that a hemorrhage (or bleeding) of the brain could cause a stroke.

Did you know there were 4 main types of strokes?

Let me introduce you to one of the four…HEMORRHAGIC stroke.

The New York Times health guide offers an AWESOME BREAKDOWN of a hemorrhagic stroke.

What I understood is the brain is extremely sensitive to bleeding. The sensitivity causes the brain tissue to become irritated which leads to swelling and a myriad of symptoms.

It’s the brain arteriovenous malformation (AVM) that weakness the blood vessels. The pressure becomes so high that the blood vessels can burst. The burst causes bleeding into the brain which can lead to a hemorrhagic stroke.

“In about 50% of (AVM) patients the presentation is a sudden hemorrhage, or bleeding into the brain, a form of stroke.”

References:
http://avm.ucsf.edu/patient_info/WhatIsAnAVM/
http://www.taafonline.org/am_about.html
http://tinyurl.com/9ets5z2
http://medical-dictionary.thefreedictionary.com/stroke
http://www.webmd.com/brain/brain-hemorrhage-bleeding-causes-symptoms-treatments
http://health.nytimes.com/health/guides/disease/hemorrhagic-stroke/overview.html

Much love,
Marissa

P.S. Learning SO MUCH.  Back to my studies!