January 12-12-12 Project: The Lesson

January 2012 was an opportunity to set sail on a personal project known as 12 months, 12 journeys, 12 lessons. This month’s project featured a neuromuscular condition known as Spinal Muscular Atrophy. I had an opportunity to learn about the condition, obtaining a glimpse into the life of my friend Blake Watson living with SMA type 2. This month offered an abundance of lessons. It’s difficult to grab hold of just one lesson; there’s one that stands out. Allowing yourself permission to adapt to life’s challenges. Giving yourself time to grow, change, and readjust. Blake eloquently states in the interview.

“Having SMA is all about adapting. I just have to remember that. If something doesn’t work out, instead of just being like, “Well, this isn’t to work out,” I should probably just really creatively think of ways to adapt to make it workout I guess.”

I want to thank Blake Watson for being open to speaking about his personal journey living with SMA. I am blessed to be able to share his personal story with you. I am excited to welcome the months ahead.

Much love,
Marissa

Podcast: January 12-12-12 Project Member Blake Watson

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Image of Blake Watson from ihatestairs.orgPodcast interview featuring 12-12-12 project member Blake Watson

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 About Blake:

Blake is a self identified computer nerd. He has a passion for designing websites which he exercises by doing freelance and volunteer projects. He has a long-standing love affair with WordPress. Blake holds a BBA in Business Information Systems and an MBA, both from Mississippi State University. On a more personal level, Blake likes to write. He dissects the ups and downs of life with a disability on his personal blog. Blake believes that God has blessed him and is thankful for his family, friends, and community that have made his life fulfilling.

Condition:  Spinal Muscular Atrophy (SMA) Type 2

SMA is a genetic neuromuscular disease. The disease manifests as muscle atrophy and severe weakness, resulting in a loss of common functions like walking, standing, dressing oneself, feeding oneself, etc. SMA is a progressive condition, meaning it gets worse over time. The severest form of SMA, Type 1, kills more babies than any other genetic disease.

Connect with Blake:

Twitter: blakewatson
Blog:ihatestairs.org

Learn more about Spinal Muscular Atrophy (SMA)

To learn more about Spinal Muscular Atrophy (SMA) please visit the fantastic website, Stop SMA, designed by Blake Watson.

Much love,
Marissa

 

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