The Spin Sisters Podcast: Episode #1- Grief & Loss

Play

Woman clenching face with hands on head

July 2, 2013

Kicking off the first episode of The Spin Sisters Podcast! We don’t jump into the trenches, we dive head first! We attempt to tackle the heavy topic of chronic illness and the stages of grief and loss that often suffocates a chronically ill person like a wool winter blanket.

Show notes:

VEDA
Yahoo Sport Article- Dana White Says PRP Therapy Helps Inner Ear Disorder
Orthokine- Wikipedia

Orthogen clinic: 
http://www.wehling-hartmann.de/wir-ueber-uns/
http://www.orthogen.ch/en/index.htm

Facebook pages/forums:
VEDA
Dizziness Blues
Dizzy World Cafe
Migraine-associated vertigo forums
Labyrinthitis.org.uk

Grief & Loss:
Elisabeth Kubler-Ross foundation
List of books by Elisabeth Kubler-Ross
Seven Choices: Finding daylight after loss shatters your world 
5 Stages of grief shared from the perspective of a physician living with Meniere’s Disease

Connect with us! We would love to hear from you over on our Facebook page…. The Spin Sisters Podcast

With Love,
Marissa & Jane

PS: Please list the resources you have found helpful!

 

Accessibility Friendly Website And Hero Of The Week!

I stumbled upon an accessibility hero this week, and his name is Eddie Yu.

Allow me to set the scene…

It’s midnight, and I couldn’t sleep. I began filtering through saved bookmarks trolling websites looking for career direction.

One of the bookmarks led me to Eddie’s website.

Before we get ANY DEEPER into the story, it makes sense to provide you with context.

For those that don’t know I suffer from a vestibular (balance) dysfunction which has left me with 24 hour disequilibrium and moments of vertigo.

These symptoms are NOT FRIENDLY for working in a standard 8-5 office environment. I realize I am going to have to find an EXTREMELY FLEXIBLE CAREER working from home, hence the reason for trolling work-from -home websites and blogs.

With those small details out of the way, let’s press on.

Landing on Eddie’s website IMMEDIATELY reminded me of my limitations.

I couldn’t  absorb ANY of the content! WHY? The background was moving. Remember that vestibular dysfunction I talked about earlier? The site was so visually oriented that it was provoking symptoms such as nausea, disorientation and mental confusion.

Eddie’s site before the adjustment (Motion Alert: heads up vestibular folks!)

NORMALLY when I’m greeted with heavy visual movement on websites I move on. Maybe because it was approaching 1:00am and I was tired and annoyed by the movement that I took direct action.

I jumped on twitter and began typing away…

Twitter messages to Eddie altering his that his content was not accessible to me because of my vestibular  disability

 

After I realized what I set into motion I became nervous. I started thinking…

“Who am I to ask someone to change their website?”

“Majority of people can view his site with no problem, Marissa, let it be!”

I even vented my frustrations to my vestibular support group and via direct message to a true accessibility expert.

But as fate would have it Eddie was prompt and kind in his response.

Eddie's twitter response to looking into the issue.

Eddie’s positive response made me feel guilty. INTERESTING, because if he dismissed or ignored me, I would have chalked it up as him being a jerk and moved on.

I was sound asleep when Eddie sent the following tweet…

Eddie's twiiter response stating the problem was addressed with a pause/play button

Rough night sleeping, woke up late, feeling yucky, BUT ALL THAT CHANGED when I saw the tweet that Eddie and his team had come up with a solution!

I didn’t even check out the solution! I yelled out to Babe telling him how great I thought Eddie was!

“BABE… he didn’t even have to respond!”

I EAGERLY headed to the site and the solution didn’t work.

“Babe… should I just drop it? It’s enough that he even responded.”

Babe encouraged me to respond.

I created a quick video for Eddie and team to show that I was not seeing the fix.

Eddie’s twitter response….

Eddie's twitter response alerting me of  his user-friendly changes.

If you NOW check out Eddie’s site you will see that he was ELIMINATED THE MOVEMENT  A-N-D created different background patterns for the user to choose from.

WHOOP! Victory. I can now choose the pattern that is the least visually bothersome to me, and NOW I can read the content.

SO… if you are interested in learning form a man with strong business and entrepreneurial acumen with a  great heart, please check out Eddie Yu’s website.

Connect with Eddie via Twitter. Don’t hesitate to shoot him a tweet and tell him how AWESOME he is! :)

Much love,
Marissa

P.S. Please note I am not an accessibility expert.  I am just a gal with a disability trying to make sure the web is accessible to those with vestibular disorders!

Podcast: May 12-12-12 Project Member Sara Gorman

Play

It’s a blessing when someone alters your perspective in a positive direction. This month’s project member Sara Gorman did just that!  Thank you Sara for being open and sharing how to live well with a chronic illness! 

Audio clip: Adobe Flash Player (version 9 or above) is required to play this audio clip. Download the latest version here. You also need to have JavaScript enabled in your browser.

Download the audio

See the transcript 

* During the interview, I had an off-the-cuff moment which lead to a hidden surprise offer! 

Much love,
Marissa

Video Blog: 12 Months, 12 Journey’s, 12 Lessons

httpv://youtu.be/lEHbTVUfqyM

Lesson:  Vanity vs The Message:

Wow, this is raw. No makeup or hair done!:) This was supposed to be a dry run, however, I felt being honest and raw was more important than my look, so I will run with it. This is an addition to previous blog post, Reflection, Nomination, Idea, Execution.

If you want to be part of the 12 months, 12 journey’s, 12 lessons, please contact me!

p.s. I know I don’t live in snow country, however, I dress like I do! Loving my winter scarf.

Much love,
Marissa

Jeffrey Zeldman and Dan Benjamin allowing me to contribute on The Big Web Show

The big web show logo and introduction text

September 1, 2011, is a day I will not forget. It’s the day I realized that despite limitations, I can still contribute. I may have a different message today then I did pre-disability, nonetheless, I still have a voice. Thank you to Jeffrey for reading my email and asking me on the show. Thank you to Dan for being so welcoming and engaging. Thank you Faith and Candi for booking and answering my questions.

Highlights from the show:

* I was able to contribute once again
* I shed light on living with a vestibular disorder
* I managed to talk faster than Gary Vaynerchuk
* I believe I gave more shout-outs than any other guest on the show, combined

The hidden lesson:

Never short change yourself. Despite your limitations and insecurities, you can still be an active participant. Creating alternative ways to contribute will be the challenge. The journey is not as meaningful without those challenges.

Personal thought:

A few years ago I questioned taking my life. I believed living with this condition was not an option. Despite how difficult this journey has been, I have learned beautiful life lessons. I am grateful I stuck around for what is turning out to be the most important moments in my life. To God, blessings. To my fiance, I am in love with you. To my family, I will fly once again. To my vestibular family, I have the utmost respect for each of you. To my internet family, I appreciate you!

Much love,
Marissa