Video Blog: Vestibular Rehabilitation Therapy Day 1 and beyond

ATTENTION: If you suffer from a vestibular disorder or are sensitive to motion and movement, please note that this video is at times shaky. ( I am working on a solution)

I will be documenting my journey through Vestibular Rehabilitation Therapy. This video details day one. I end up running into the insurance machine but this time I prevail.

The focus of this visit was initial evaluation. The purpose of the visit was to provide history and set realistic expectations.

The goggles are part of the device called Videonystagmoscopy

“Videonystagmoscopy has been used to subjectively observe the responses of the vestibular system in a population of patients with vestibular deficits. The videonystagmoscopy device is made of one or two CCD cameras mounted on lightproof goggles, allowing a subjective observation of ocular movements on a video monitor. The eye movements, as well as the position of the head in space, can be recorded on videotape.”

As we reveal my defects we will gather a realistic expectation of what can be achieved through vestibular rehabilitation.

Much love,
Marissa

2 Pieces Of Tape = Better Quality Of Life?

Marissa with tape on glasses

Ok, so I am walking around this holiday season with two pieces of tape on the inner part of my glasses. This is called Binasal Occlusion. My neuro eye doctor believes this will open up my visual field. The vestibular disorder has caused me to see the world in tunnel vision. I often look down when walking. With the prisms, I am walking more upright. With the addition of tape to the glasses, I am not bumping into as many things around the house as usual. It’s looking like I will have to wear the tape a few more months. Can two pieces of clear tape equal a better quality of life? Time will tell!

So, if you see a guy or gal on the street walking around with two clear pieces of tape on their glasses, pass a compliment or smile! I know I could sure use a little reassurance when out and about. I have been a bit self conscious these past few days, hoping the insecurity will pass.

Much love,
Marissa

More Than A Work Badge? (Audio)

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More Than A Work Badge? (Audio)

Written blog post referenced: More Than A Work Badge?

Standing in and embracing my truth!

Much love,
Marissa

 

Transcript of audio:

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Helping A Dizziness Blues Community Member Through A Tragic Time… ( update)

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Update: I want to thank everyone who supported Shirley and her family. Shirley and family have found a new home and are getting back on their feet.  We appreciate you!

Large tree uprroted and fallen on shirley's home

Shirley was recently diagnosed with a life altering vestibular disorder. On top of all this, her home was hit by a tornado.

“Yesterday my house was hit by a tornado. (we are fine but the house is gone)!”

Let’s lift Shirley up during this terrible time for her and her family. Every bit helps.  Living with a vestibular condition is life altering, but to lose your home as well is devastating.

Ways to donate:

Campaign closed. Thank you SO MUCH! 

Much love,
Marissa

p.s. Please don’t hesitate to send words of encouragement to Shirley via the comments below!

Vocational Rehabilitation or Bust

I strongly believe finding resources limited the number of dark days this condition presents. The HMO medical community and my employer had given up on me but I had sense enough not to give up on myself. I figured there had to be a way for me to actively participant in the workforce in some capacity. I have a capable mind and an unyielding spirit.  These qualities allowed me the ability to get out and explore my options. Maybe there was a person or organization that would be willing to give me some guidance? In comes Vocational Rehabilitation…

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Canalithiasis, is that even a word?

It’s quite interesting that I worked in the medical field for a period  of time before being sidelined by my condition. I was becoming intimately  familiar with the daily dealings of the administrative side of healthcare. Working alongside doctors and nurses, training them how to run sophisticated electronic medical records, I found myself mastering the art of labeling. In order for me to train them properly, I had to understand the workflow of the hospital and how patients were triaged, treated and released. Immediately, as patients are checked into the clinic or hospital, the goal was to quickly assess and compartmentalize information in order to give patients a label. The labeling came in different forms,  such as the placing of a medical wristband on the patient for identification, to entering a diagnosis code into the system so that the insurance would be billed properly. It was interesting to see how well oiled the machine ran, until a patient presenting rare or interesting symptoms forced a wrench in the system and was spit out.

Which leads me into my personal journey and how my condition threw a wrench in the system. I will save you the stress of intimate details and break this down as much as I can…

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