A Book I Wish I Had In My Arsenal 5 years ago!

Front Cover of book Despite Lupus: How to live well with a chronic illness.

Have you read a book so inline with your experience that you began to markup every page? I have dismantled my copy of project 12-12-12 member Sara Gorman’s book, Despite Lupus: How to live well with a chronic illness. This book will force you to stop and evaluate your thoughts and approach to living with a chronic illness. The book is focused on lupus; however, I found the book inline with my chronic illness experience. Heck, the book got me to start taking a daily nap. That extra daily nap is giving me additional energy that I so desperately need! I highly recommend this book.

Much love,
Marissa

Fascinating Memoir. Life Rolls On: My Life With SMA

This month’s 12-12-12 project focuses on Spinal Muscular Atrophy. To learn more about the condition I am combing through information from different sources. I stumbled upon this gem:

Book cover for Life Rolls On.A fascinating memoir. Rich Ochoa and Duane Hale team up to document the life of Duane Hale living with Spinal Musical Atrophy.

The book does a beautiful job giving insight into Duane’s struggles and triumphs living with Spinal Muscular Atrophy. I appreciate the focus on Duane’s wife as a caregiver and support in Duane’s life.

“Life Rolls On: My Life With SMA” personalizes Spinal Muscular Atrophy. This book allowed to see the disease form the perspective of someone living with the condition.

I highly recommend this book. I was fully engaged in the story and thankful for the lessons I was taught.

Much love,
Marissa