Finally Turning On Life’s Joyful Flashlight

These last 7 years of vestibular(balance) chaos has led me into deep, dark, corners. I don’t often get opportunities to relish in joy.

Differing disabilities, one community | Meet disabled people online

 

Yesterday seeing the article that Blake Watson and myself coauthored for Disability Horizons, left me cloaked in joy!  I was beaming yesterday.

 

Disability Horizons - A 21st century view of disability

I want to experience more days like this! I need to experience more days like this. This condition has no problem leading me down a dark path. I realize I will have no problem finding my way out of darkness with the help of life’s joyful flashlight.

Much love,
Marissa

January 12-12-12 Project: The Lesson

January 2012 was an opportunity to set sail on a personal project known as 12 months, 12 journeys, 12 lessons. This month’s project featured a neuromuscular condition known as Spinal Muscular Atrophy. I had an opportunity to learn about the condition, obtaining a glimpse into the life of my friend Blake Watson living with SMA type 2. This month offered an abundance of lessons. It’s difficult to grab hold of just one lesson; there’s one that stands out. Allowing yourself permission to adapt to life’s challenges. Giving yourself time to grow, change, and readjust. Blake eloquently states in the interview.

“Having SMA is all about adapting. I just have to remember that. If something doesn’t work out, instead of just being like, “Well, this isn’t to work out,” I should probably just really creatively think of ways to adapt to make it workout I guess.”

I want to thank Blake Watson for being open to speaking about his personal journey living with SMA. I am blessed to be able to share his personal story with you. I am excited to welcome the months ahead.

Much love,
Marissa

My Boy Blake

Hey guys. I would like to pay it forward!  In yesterday’s Pay It Forward Blog Post,  I mentioned my friend Blake Watson. I need a little help from you guys. If you guys could please vote for my friend Blake. I want him to win the Kindle with Sitepont ( tech books). He has spinal muscular atrophy and he can’t physically hold a book to well. He was sweet to mail me all of his web design books he cant use. We are hoping that a Kindle will allow him flexibility to access eBooks, which he prefers.  I really want to win this for him! You can vote by clicking the like button below the title “My Boy Blake…” Votes are counted by likes under the photo image.
Photo contest entry image showing how to vote
When you click the like button under the image you are prompted to allow the Fanzila app permission to access your account. After you allow permission you have to go back and hit the like button again. Please go back and make sure your vote was counted!:)


*Note from PHP Masters “There are some awesome entries coming in for our photo competition. Love it!! A couple of people have mentioned having trouble voting. Make sure you allow the Fanzila app permission to access your account and you’ll have no problems. Good luck to all! ^hawk ”

Thank you for your support!

Much love,
Marissa