Podcast With 12-12-12 Project Member Pam Sloate-Dystonia

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Pam opens up about her experience living with Dystonia since age 8 1/2. She talks openly about Dystonia, grief & loss, and maintaing a positive attitude. She shares SOME VERY important life lessons! It’s a MUST LISTEN.

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Much love,
Marissa

P.S. Pam, thank you for stepping outside of yourself to do this interview. I love you girl!

11 comments

  1. A wonderful podcast, congrats on this one to both you ladies! It was truly a wonderful listen, and the topic was so interesting, and Pamela spoke so eloquently on the subject of Dystonia, and truly showed what a vast amount of knowledge she has gained on the whole topic of dystonia, and not just on the bits which concerns her disorder.

    Thank you Pamela, for sharing your knowledge and making us all aware of Dystonia

    • Rhiann! Thank you for kind words. I appreciate you being warm and welcoming to everyone that has participated in the project. You are a sweet soul and I am BLESSED you are in my life.

      Much love,
      Marissa

  2. First, Thank you so much Marissa and Pamela. Emotionally moving for me. I have had adult onset Dystonia for 12 years and Pamela’s eloquent description of her journey mirrors my own. Her humorous blog is a constant source of inspiration and I refer people to it when they ask-“What is Dyshuh?”.
    The 12-12-12 project is Awesome. A new spot for referrals.
    Thank you again and again.
    Kari

    • Kari,

      You are VERY welcome. Thank you for sharing your experience. This project has opened my eyes to the importance of community. Regardless of medical conditions we are connected! Thank you for being a part of this journey.

      Much love,
      Marissa

    • Thank you Lee!

      “It helps to know you are not alone”

      I wholeheartedly agree! There is power in numbers.

      Much love,
      Marissa

    • Kaitlin,

      Your air hugs are welcomed and appreciated. We are sending hugs right back at you! You are NOT ALONE. There is power in numbers.

      Much love,
      Marissa

  3. i have generalized dystonia too is there a bachman strauss orginization in ca because im trying to look for volunteer work

      • Kaitlin,

        Here is a message from my soul sister, Pam of Dystoniamuse.com

        “Kaitlin, I’ve responded to you privately in a message on Facebook. There are many needy charities that could use your assistance and I encourage you to pursue your interest in volunteer opportunities. What’s important is your desire to do your part and make a difference. I also want to reiterate Marissa’s words: you are not alone. -Pamela-”

        Much love,
        Marissa

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