Did You Know May 10 is World Lupus Day?

World Lupus Day Header

Would you have known today is World Lupus Day? I personally admit I had no idea there was a World Lupus Day before the 12-12-12 project.  My introduction to lupus presented itself in my teenage years. My mom and I were sorting through old photos and a picture of her best friend sparked a memory.  It was then she shared that one of her best friends died from lupus. I immediately connected the word lupus to death.

The word lupus once again entered consciousness when my doctor suggested having me tested for the disease. I immediately was reminded of my moms best friend and I became scared. The initial test came back false-positive.

While most people with lupus test positive for ANA, medical conditions such as infections, other autoimmune diseases and false positives can also produce a positive test result. For this reason, your doctor may order some other blood tests to correctly diagnose SLE.

I was tested again and cleared. Lupus became a subject I did not think about again until the 12-12-12 project. When I went through a list of conditions I knew I had to explore lupus. I wanted to make sure I educated myself on a condition that had taken one of my mom’s best friends and became a personal concern.

With that said, I believe it’s important for me to alert everyone I  encounter that Today Is World Lupus Day! I encourage you to click the image below and sign the awareness pledge.

World Lupus Day Pledge

Please check out this beautiful video narrated by Julian Lennon as he talks about the legacy of his friend Lucy.

 

Much love,
Marissa

 

2 comments

  1. Good post. My cousin has lupus so I am trying to be aware. A member of my immediate family is at kind of an in between place. She showed up with 2 markers for lupus in a blood test and on further testing showed up with only 1. She has serious and complicated allergies/ autoimmune issues so that might be having a role in the blood tests. The specialist wants to keep monitoring her as she ages.

    • Thank you Linda for sharing this story! It’s amazing how prevalent autoimmune conditions are. Hoping that the near future brings additional answers and they are able to eliminate these complex autoimmune conditions.

      Much love,
      Marissa

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