Chronic Dizziness Podcast …Coming Soon

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EXCITED to be joining forces with my friend Jane to bring to you a podcast about living with chronic dizziness.

We are going to get down and dirty in the trenches navigating through this murky world we call chronic dizziness.

If you have ANY topics you would like covered, don’t hesitate to shout them out over on our Facebook page.

NOTHING is off limits!

We appreciate and welcome your well wishes and support!

Much love,
The Spin Sisters!
(Marissa and Jane)

Connect with us:
The Spin Sisters Facebook Page
The Spin Sisters Twitter Page

 

Podcast: February 12-12-12 Project Member Kim M.

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12-12-12 project member Kim M. From Hope Whispers Podcast interview featuring 12-12-12 project member Kim M.

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About Kim:

Kim was born and raised on a tiny island in Pacific Ocean.  Kwajalein was her home until she graduated from High School in 2000.  She spent the next 5 years working at Walt Disney Worlds Animal Kingdom.  Married her high school sweetheart in 04 and entered the world of motherhood the next year.  Kim’s greatest blessing is her family.  Now a mother of 2 boys parenting is a challenge she enjoys.  She began her love affair with photography shortly after her first son was born.  She loves nature and all things outdoors.  She loves life and tries her best to live each day to the fullest!  She started the blog, Hope Whispers, where she documents living with a rare liver disease.

Condition: Budd-Chiari Syndrome

According to The Merck Manual:

“Budd-Chiari syndrome is caused by blood clots that completely or partially block the large veins that carry blood from the liver (hepatic veins) into the inferior vena cave.”

Connect with Kim:

Twitter: @KMunoz28
Blog: http://kmunozbcs.blogspot.com/

Support Kim:

Help Kim raise much needed funds for her liver transplant. Show your support for Kim by rocking Hope4Kim products. Proceeds will go towards Kim’s transplant fund!

Learn more about Budd-Chiari Syndrome, Liver Disease, Organ Donation:

Budd-Chiari

Liver Disease

Organ Donation

Be sure to check out Kim’s fantastic blog Hope Whispers to learn what it’s like living with Budd-Chiari Syndrome.

Much love,
Marissa

 

Audio Transcript: 

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Podcast: January 12-12-12 Project Member Blake Watson

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Image of Blake Watson from ihatestairs.orgPodcast interview featuring 12-12-12 project member Blake Watson

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 About Blake:

Blake is a self identified computer nerd. He has a passion for designing websites which he exercises by doing freelance and volunteer projects. He has a long-standing love affair with WordPress. Blake holds a BBA in Business Information Systems and an MBA, both from Mississippi State University. On a more personal level, Blake likes to write. He dissects the ups and downs of life with a disability on his personal blog. Blake believes that God has blessed him and is thankful for his family, friends, and community that have made his life fulfilling.

Condition:  Spinal Muscular Atrophy (SMA) Type 2

SMA is a genetic neuromuscular disease. The disease manifests as muscle atrophy and severe weakness, resulting in a loss of common functions like walking, standing, dressing oneself, feeding oneself, etc. SMA is a progressive condition, meaning it gets worse over time. The severest form of SMA, Type 1, kills more babies than any other genetic disease.

Connect with Blake:

Twitter: blakewatson
Blog:ihatestairs.org

Learn more about Spinal Muscular Atrophy (SMA)

To learn more about Spinal Muscular Atrophy (SMA) please visit the fantastic website, Stop SMA, designed by Blake Watson.

Much love,
Marissa

 

Audio Transcription:

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More Than A Work Badge? (Audio)

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More Than A Work Badge? (Audio)

Written blog post referenced: More Than A Work Badge?

Standing in and embracing my truth!

Much love,
Marissa

 

Transcript of audio:

Continue reading

Perception vs Reality (Audio)

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Update: It’s important to live your truth. Members of my family are seeing the joy I am experiencing attempting the vegan lifestyle. They have been willing to try the food and are starting to become open to the idea. Cheers to moving forward and living your truth!

“Transition is the process of letting go of the way things used to be and then taking hold of the way they subsequently become.” ~ William Bridges

* Thank you Marilyn for exposing me to this quote!

Much love,
Marissa

Helping A Dizziness Blues Community Member Through A Tragic Time… ( update)

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Update: I want to thank everyone who supported Shirley and her family. Shirley and family have found a new home and are getting back on their feet.  We appreciate you!

Large tree uprroted and fallen on shirley's home

Shirley was recently diagnosed with a life altering vestibular disorder. On top of all this, her home was hit by a tornado.

“Yesterday my house was hit by a tornado. (we are fine but the house is gone)!”

Let’s lift Shirley up during this terrible time for her and her family. Every bit helps.  Living with a vestibular condition is life altering, but to lose your home as well is devastating.

Ways to donate:

Campaign closed. Thank you SO MUCH! 

Much love,
Marissa

p.s. Please don’t hesitate to send words of encouragement to Shirley via the comments below!

Jeffrey Zeldman and Dan Benjamin allowing me to contribute on The Big Web Show

The big web show logo and introduction text

September 1, 2011, is a day I will not forget. It’s the day I realized that despite limitations, I can still contribute. I may have a different message today then I did pre-disability, nonetheless, I still have a voice. Thank you to Jeffrey for reading my email and asking me on the show. Thank you to Dan for being so welcoming and engaging. Thank you Faith and Candi for booking and answering my questions.

Highlights from the show:

* I was able to contribute once again
* I shed light on living with a vestibular disorder
* I managed to talk faster than Gary Vaynerchuk
* I believe I gave more shout-outs than any other guest on the show, combined

The hidden lesson:

Never short change yourself. Despite your limitations and insecurities, you can still be an active participant. Creating alternative ways to contribute will be the challenge. The journey is not as meaningful without those challenges.

Personal thought:

A few years ago I questioned taking my life. I believed living with this condition was not an option. Despite how difficult this journey has been, I have learned beautiful life lessons. I am grateful I stuck around for what is turning out to be the most important moments in my life. To God, blessings. To my fiance, I am in love with you. To my family, I will fly once again. To my vestibular family, I have the utmost respect for each of you. To my internet family, I appreciate you!

Much love,
Marissa

The Importance Of Reaching Out (Audio)

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I want to say thank you to all the experts that have responded to my emails. Your responses mean more to me than you will ever know! Blessings to you…

Emily Lewis
Michael Locke
Katrin Eismann
Janine Smith
Eric Basir
Prisca
Mikko Vartio
Jeremy De La Garza
Sara Sutton Fell
Jeffrey Zeldman
Kristen Grote

Much love,
Marissa

Caring For The Caregiver/Caretaker Audio

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Excited to be sharing with you podcast #2. This podcast will focus on gratitude for caregivers/caretakers in my life and the lessons they have taught me….

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Much love,
Marissa

Adding Audio To The Blog

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Hope you enjoy this new audio platform I  am introducing to the blog:

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Linking it up!

Chiropractor Extraordinaire:

Gordon Grannis, D.C.

 

Books mentioned:

Painless Writing by Jeffrey Strausser

Painless Grammar by Rebecca Elliott

 

Much Love,
Marissa