Living this nightmare for the last nine years has changed me. EVERY aspect of my life has been altered by disruptive daily symptoms.
A vestibular disorder (includes the parts of the inner ear and brain that help control balance and eye movements) is the term that encompasses the following horrific symptoms.
Here are just a few…
- Visual-spatial problems
- Excessive clumsiness
- Poor hand-eye and eye-foot coordination
- Trouble moving in the dark
- Difficulty reading or concentrating
- Head may be held in a titled position
- Tendency to touch or hold onto something when standing, or to touch or hold the head while seated
The first few years
The first few years of silently battling these symptoms left me feeling depressed and isolated.
The symptoms are often subjective, and medical practitioners have a difficult time believing in symptoms that can’t be tracked with lab tests or imaging. I thought I was going crazy!
VEDA to the rescue:
VEDA (Vestibular Disorders Association) entered my life at a low point. It provided me with information that enabled me to rebuild a solid informational foundation. I felt more confident communicating with doctors and specialists. This newfound confidence allowed me to determine which medical professionals were qualified to look after my well being and would help elevate my quality of life.
I’m forever grateful to VEDA for catching my back, and I want to make sure they’re around to support the next sufferer.
What can you do?
- Acknowledgment: I can’t tell you how many people I’ve encountered that have dismissed my symptoms because I “don’t look sick”! It’s disheartening and disrespectful.
- Spread awareness. They say awareness is the catalyst for change, and I’m hoping you’re willing to be a change agent! Balance Awareness Week is Sept 15 – 21, 2014.
Also, if you have the financial means to do so, I would appreciate your donation. Your funds will be going to help VEDA!
Balance disorders MUST BE eradicated, and it’s starts with awareness.