Vestibular Health Tip: Ice Pack

Dizziness, nausea, head fog, headache, are just some of the symptoms I battle daily. For many vestibular disorder sufferers, these symptoms are accepted as part of our normal daily experience. My vestibular rehabilitation therapist (VRT) has introduced me to cold packs. When my symptoms become unbearable during therapy exercises, we break and apply an ice pack to the back of my neck. We wait for the symptoms to subside and then we resume the exercise. The ice pack has a calming effect. It gives me a sense of control. It is an opportunity to regroup and a reminder to not continue to push myself beyond limits. It allows me to take the time I need and then resume activity.

My VRT therapist has encouraged me to use the ice pack as part of my daily regimen. I picked up this Bed Buddy hot/cold pack at the local drug store.

Marissa rocking her ice pack

 

Advantages:

It works!

It’s reusable.

The material is soft and not irritating on the skin.

 

 Disadvantages:

Doesn’t stay cold very long.

It’s a bit heavy.

 

 

Please share the cold pack that is getting you through! I would love to check out your suggestions.

p.s. If you have any hair conditioner recommendations, please add them to the comments below!:) My hair is crazy these days.

* Note: I am not advocating ice pack use for every vestibular patient.  Please consult with your doctor or VRT specialist and see if an ice pack would help with your current treatment and symptom reduction plan.

 

Much love,
Marissa

Finally Turning On Life’s Joyful Flashlight

These last 7 years of vestibular(balance) chaos has led me into deep, dark, corners. I don’t often get opportunities to relish in joy.

Differing disabilities, one community | Meet disabled people online

 

Yesterday seeing the article that Blake Watson and myself coauthored for Disability Horizons, left me cloaked in joy!  I was beaming yesterday.

 

Disability Horizons - A 21st century view of disability

I want to experience more days like this! I need to experience more days like this. This condition has no problem leading me down a dark path. I realize I will have no problem finding my way out of darkness with the help of life’s joyful flashlight.

Much love,
Marissa

6 Important Facts About Lupus

It is estimated that 1.5 million American’s are living with Lupus. According to the Mayo Clinic:

 Lupus is a chronic inflammatory disease that occurs when your body’s immune system attacks your own tissues and organs.

 

Lupus awareness banner

 

This month’s 12-12-12 project features an awesome woman, Sara Gorman, living with Systemic Lupus. I have been following Lupus.org like a hawk, educating myself on the condition. I appreciate the daily important facts about lupus. Here are the facts shared the last 6 days!

 

May 1: Lupus is an unpredictable and complex autoimmune disease that causes inflammation and can damage any organ in the body with life-threatening consequences.

 

May 2: Ninety percent of the people who develop lupus are female. Males also can develop lupus and their disease can be more severe in some organs.

 

May 3: Lupus develops most often between ages 15 and 44. However, between 10 and 20 percent of cases develop during childhood and these cases can evolve more rapidly into serious health complications.

 

May 4: In lupus, something goes wrong with the immune system, which is the part of the body that fights off viruses, bacteria, and germs. The result is the production of autoantibodies that causes inflammation.

 

May 5: Some people have genes that allow them to develop lupus. Factors that may trigger lupus in these people include infections, ultraviolet light, extreme stress, certain prescription drugs, and certain hormones.

 

May 6: Many symptoms of lupus mimic those of other illnesses, and symptoms can come and go over time, which makes diagnosis more difficult. Consequently, lupus can take three to five years or more to diagnose.

 

Much love,
Marissa

I Will Email You For The Next 30 Days An Inspirational Quote

What motivates you to get through your day? Desiring a bit of inspirational motivation? I am offering a service donation for $5.oo through Raise5.com. I will email you for the next 30 days an inspirational quote from varied sources. (click image below)

Raise5 - I will email you for the next 30 days an inspirational quote

 

 The service donation will go to a wonderful organization: AboutFace

 

AboutFace Homepage

 

Get Involved:

Support causes with your skills and talents

Check out Raise5 and see how your talents can turn into donations for a charity or non-profit!

Much love,
Marissa

 

April 12-12-12 Project: The Lesson

small plant coming out of the groundImage: Sujin Jetkasettakorn 

 

Can you image living with an undiagnosed condition for 24 years. Believing that you may be going mad and that the symptoms you have been carrying have been dismissed time and again. April’s 12-12-12 project member Rhiann Johns has been living that exact health story.

I was blessed to have an opportunity to interview Rhiann and her wonderful mother Hilary. Important lessons have been revealed along this interesting journey.

 Mother does know best. I suppose I picked out things early on, nagging at the back of my mind, when she was born. I should have listened more. As I said, mother does know best.

Trust in your instincts and our own bodies. I think we all know when there’s something going on with our bodies. Be more assertive with doctors. Push more for being referred to testing and for getting a diagnosis.

Thank you Rhiann and Hilary for opening up and giving us lessons that will plant seeds and help us all continue to grow.

 

Much love,
Marissa