2 Pieces Of Tape = Better Quality Of Life?

Marissa with tape on glasses

Ok, so I am walking around this holiday season with two pieces of tape on the inner part of my glasses. This is called Binasal Occlusion. My neuro eye doctor believes this will open up my visual field. The vestibular disorder has caused me to see the world in tunnel vision. I often look down when walking. With the prisms, I am walking more upright. With the addition of tape to the glasses, I am not bumping into as many things around the house as usual. It’s looking like I will have to wear the tape a few more months. Can two pieces of clear tape equal a better quality of life? Time will tell!

So, if you see a guy or gal on the street walking around with two clear pieces of tape on their glasses, pass a compliment or smile! I know I could sure use a little reassurance when out and about. I have been a bit self conscious these past few days, hoping the insecurity will pass.

Much love,
Marissa

Video Blog: 12 Months, 12 Journey’s, 12 Lessons

httpv://youtu.be/lEHbTVUfqyM

Lesson:  Vanity vs The Message:

Wow, this is raw. No makeup or hair done!:) This was supposed to be a dry run, however, I felt being honest and raw was more important than my look, so I will run with it. This is an addition to previous blog post, Reflection, Nomination, Idea, Execution.

If you want to be part of the 12 months, 12 journey’s, 12 lessons, please contact me!

p.s. I know I don’t live in snow country, however, I dress like I do! Loving my winter scarf.

Much love,
Marissa

Reflection, Nomination, Idea, Execution

2011  calendar page turned up to show the new year 2012Image: dream designs / FreeDigitalPhotos.net

Intro:

Living with a chronic vestibular disorder, I am reminded daily that I am living with a life altering condition. That daily reminder fuels this blog. It encourages me to find ways to become a better version of myself despite this disorder.

Nomination:

I was recently nominated for the WEGO Health Activist Awards Best Kept Secret. I feel blessed and humbled that someone in my community cast a vote for my nomination (Be sure to nominate your Health Activist Best Kept Secret).

After reviewing the list of nominees, I was taken aback. There are so many wonderful people living with and supporting awareness of various health conditions and disorders.

Idea:

For a moment, I found myself lost in another person’s story and passion. After reading several nominees blogs, I had a thought. Could a shift in focus away from vestibular struggles help me through my vestibular struggles? Educating myself on other medical conditions and focusing on another person’s journey may be the best way for me to pull through my own condition.

I currently attend 3 doctors visits monthly  These visits make me nervous. I realize vestibular disorders are complex, and in 6 years, I have yet to find a “cure.”! I realize that with each visit, therapy, adjustment, and exam that doesn’t deliver a “cure”, my options are narrowing.

Despite my supportive network, at times I feel alone. What would it feel like to be reminded that I am not alone? To be reminded that there are others in the struggle, and despite their conditions, they are moving in a positive direction.

Execution:

* In 2012, I would like to educate myself monthly on a health condition other than my own.

* I will purchase a T-Shirt monthly supporting a disorder/condition/cause. I will wear that T-Shirt to my 3 doctors visits each month.

* I would like to hold an interview and highlight a disorder/condition/cause each month on Abledis.com.

How can you help? :

If there is a condition or a disorder I should know about, please alert me!

Final thoughts:

2011 has been a year of change and growth. Thank you Lord for your many blessings. I am blessed for the addition of wonderful people that have come into my life this year.  Thank you to my fiance and his family for their unwavering love. Thank you to my family for their support. Special thanks to my gram. Gram you are an inspiration and blessing. Thank you to the doctors that are mentoring and helping me find answers. For the first time since being diagnosed with a vestibular disorder, I am actually welcoming a New Year. Cheers to 2012!

Much love,
Marissa

 

Appreciation Toward My Accessibility Setup

Marissa sitting alongside her walking sticks reflecting

I was feeling introspective on my walk today. I found myself full of appreciation toward my accessibility setup. I am rocking my new prism glasses and walking long distances with my trekking poles. Armed with my cell phone, glasses and walking sticks, I am able to walk solo around the neighborhood. I found myself loving and appreciating the independence. Cheers to moving in a forward direction!

Much love,
Marissa